Sleep Training Results

So it’s been awhile since I’ve posted. Our first round of attempted sleep training failed. One thing we seem to have learned is our boy does things when he’s good and ready not when we are. It probably didn’t help that while attempting this the first time he ended up catching hand, foot and mouth disease. We gave up but a few weeks ago tried again. This time it went much smoother and was a success. We no longer cradle and rock him to sleep. He gets pjs on, teeth brushed then curls up with a giant stuffed elephant on our bed for bedtime stories. After his final story we lay him in the crib, pat his back for a few minutes until he starts to fade, then he’s on his own falling asleep the rest of the way. It only took I think 3 or 4 nights before it went perfectly smooth, but those first nights were not bad and nothing compared to the first time we tried to break the cradle and rock to sleep habit.

Sometimes if at first you don’t succeed take a break before trying again. Some kids don’t do so great when forced to change things when they aren’t ready. Mine is one of those and has proven that a few times.

He still is not sleeping through the night, however we don’t have to get out of bed unless he can’t locate his binkie then we just put it in front of him and walk back to bed. I am either just being paranoid or maybe I’m not and I am right or maybe I’m just crazy but I think him not sleeping all night is shunt related. He has an MRI and a follow up with his neuro next month and I plan to bring it up.

Night 3, back to the old

After the battle for his morning nap and the fact that he doesn’t seem to be feeling well, I decided for his afternoon nap I was going to let him fall asleep in my arms. He needs some decent sleep that isn’t a fight to start. If he is getting sick lack of sleep and getting all worked up isn’t going to help him. I scheduled an appointment with his doctor tomorrow and hope he doesn’t have an ear infection.

Back to the sleeping…. my husband made a good point to me. Little man has always done things in his own time, even when we push for them sooner. Crawling, no matter how much we tried working with him to crawl he wasn’t having it. Since he was slightly behind with crawling and pulling up it was recommended to do physical therapy. The week before we started, he decided to start crawling. Basically he doesn’t seem ready for this so why push it?

We have decided now is not the time for us to try this method of changing his sleep. Holding him until he falls asleep is much less stressful for all of us than the fight we have had the last 2 nights.

Night 2

Well we started off by ending our bedtime routine with a crying screaming fit. He seems to know that after story time it is time to be put in the crib now, he’s still not happy about that. He’s been cranky pants all evening and this is only adding to the chaos.

He was so close to being asleep in my arms at one point, I laid him down and the screaming was back. Picked him up and he was asleep as soon as he cleared the crib! Moved him back to the crib he started to fuss but I shushed and patted and he’s asleep at 7:48. Not too terrible, now to make it through the rest of the night. Fingers crossed it goes as well as it can.

Up at 10:45, was a huge battle and didn’t go back to sleep until just after 12:30. Then back up at 3:20.

Second night was worse than the first. He now knows when we cradle him to sooth and settle him down it means we will be moving him to the crib. He doesn’t like that so as soon as we try and cradle him, what used to calm and sooth him, now upsets him and he starts screaming.

I’m not sure I can keep this up.

Sleep Coaching/Training Night 1

Night One:

We started at 6:30. I figured might as well go straight for it and see what happens. As expected, he started screaming. Since we started the bedtime routine early to lead to an earlier bed time I figured let’s go back to reading, settle down some more and wait until he’s showing signs he’s tired.

Once the eye rubbing started round 2; same results. Back to the bed…. hmm… he lays on the bed no problem but won’t lay in the crib. What’s different, dark in the nursery but the bathroom light is on giving the bedroom some light. We turn the nursery light on and try again. This time better luck. He is a little fussy but not screaming bloody murder. He goes back and forth between quiet and fussing for about 10 minutes before it’s back to screaming. Now we decide we need a softer light, we move my salt lamp to the nursery as a temporary night light. I cradle him in the rocker (not rocking just patting his back), he’s almost asleep. I try to move him very very slowly continuing to pat him. My mistake, stopped patting when I went to move my hand from under his neck. Wide awake and screaming.

Now it’s my husbands turn, I tell him what I did and what I think failed. He tries to repeat minis my mistake….

7:48 he’s down, quiet and barely asleep.

8:00 he’s out

11:08 he’s up, I give him a minute but he’s fussing so give him his binkie and

11:10-13 pat on butt till asleep

11:16 two little cries

*stayed in crib

1:15 awake again. gave binkie, no luck. Tried patting, still extremely fussy. Starting to get frustrated, husband steps in to help. Diaper change.

1:28 2 oz bottle

1:29 hubby starts patting working towards the crib

1:34 he’s back to holding him after a fit. After a bit I step in.

1:50 try teething drops

1:53 I’ve lost my patience. This is tough.

2:11 he’s gotten so worked up crying and screaming I feel like he’s going to make himself sick. We decide to hold him to sleep.

2:30 he’s asleep, now I can try and an hour and a half of sleep before getting up for work

What a night. This is tough, it’s going to hard to get through this.

Sleep Training/Coaching

Whatever you want to call it, Training, teaching, coaching, it’s all the same. It’s getting your baby used to sleeping the way you want them to. After 2 months of no longer sleeping through the night I am feeling it. Somethings got to change. We probably should have done this sooner but we didn’t. We meant to try this soon, but we didn’t. So here we are now, fixing to start trying to “teach” the almost one year how to put himself to sleep.

How did your kid(s) learn to fall asleep on their own? Any suggestions for us?

I will post how last night went as night one and how tonight goes as night two in the morning. For now, I’m off to catch some sleep while I can. Wish us luck!

Hydrocephalus Diagnosis

I am going to apologize in advance for how long this post will be. I hope that if you are reading this you don’t give up and read it all. Maybe you have gone through this or something similar, or maybe you know this is in your near future and want to know you are not alone. Either way, this is the story of one of the hardest times of my life.

I think in the back of my mind I knew something wasn’t right. I didn’t want to admit it though. After everything we had already been through I couldn’t admit that anything else could happen to my sweet baby boy. It took someone speaking up and telling me it was possible that Jax had Hydrocephalus. I had never heard the term before but after doing my own research I knew it was possible. My thoughts in the back of my mind of his head being too big were shared by others. Someone finally had the guts to come forward and I truly appreciate it. After realizing the possibility based on researching Hydrocephalus I spoke to my husband then called his pediatrician. They scheduled an appointment for that afternoon. It was a Monday; I remember it all too clearly. They measured his head and based on the growth since his last appointment it had increased significantly. They called the local children’s hospital and let them know we were going to be headed over.

The children’s hospital is right across the street from the hospital where Jax was born and spent time in the NICU. The drive there was a gloomy reminder of the drives to visit him in the NICU.

Once we arrivedroom in the E.R. diagnosisHydrocephalus.a room on another floor. This is where we would end up spending the next few nights. He had to begin to fast after midnight so he could have an MRI the following day to determine the best way to proceed.

A neurosurgeon came in to discuss the possible options. He said based on the MRI shows he might have the option to have an ETV or have a shunt placed. The ETV was a possibility of being an option, if the MRI showed this option isn’t possible our only choice was a shunt. We as parents had to decide if the ETV was possible if we would want to try or not. The neurosurgeon said most doctors won’t perform an ETV under a year old but he was an aggressive doctor and if that is an option to avoid a shunt he would do it if we chose. I don’t remember at what point he said it, but the one quote that I remember him say is “a shunt is a mechanical device, it’s not a matter of if it will fail but when”. After lots of research on our phones and talking we decided if the ETV was possible that’s the route we wanted to take.

I understand having to fast to be put under, I get it. What killed me while fasting was my poor baby boy didn’t understand. He had no idea why no matter how much he cried I would not feed him, no matter how much he tried to tell us he was hungry we wouldn’t feed him. We had no idea when he would be scheduled for his MRI and we wouldn’t know until 7am. It was after 7am and we still hadn’t heard, he is miserable, we are miserable not being able to feed him knowing he can’t understand what’s going on. They finally let us know he was scheduled for 12:30 but still had to fast in case he got bumped up sooner. That’s over 12 hours they asked my just shy of 6 months old baby boy to fast. Even longer if you then add the time for the MRI, waking up and being able to nurse again. This was one of the hardest things for me to go through as a mom. That Tuesday was one of many tough days that week.

At some point while waiting the neurosurgeon came in to check on us and we talked to him about having a extremely hungry baby waiting on the MRI. He said he would try and get him bumped up in the schedule if possible.

It felt impossible at the time, but we survived and made it to the MRI. Waiting to find out the results was nerve racking. The neurosurgeon came to speak with us, an ETV wasn’t an option and he would be getting a shunt. The MRI showed some droplets of blood in the brain, apparently an IVH, intraventricular hemorrhage, occurs in some preemies. I read that babies born before 30 weeks typically have an ultrasound of the head to screen for IVH, where babies born between 30 and 34 weeks only have an ultrasound if they show symptoms of IVH. Our little guy was born at 34+4 weighing 6lbs even. He had no symptoms so never had a head ultrasound. The neurosurgeon believes this is what led to his Hydrocephalus.

The neurosurgeon was nice enough to hold off and schedule his surgery for Friday. With it being Tuesday afternoon, if it got scheduled for Wednesday or Thursday he wouldn’t be scheduled until later in the day and having to fast starting at midnight we were glad the neurosurgeon was considering that. He was scheduled for first thing Friday morning with surgery at 8. He was taken to pre-op at 7. Leaving that hospital room, knowing he was going for brain surgery was hard. Trying to hold it together was impossible. Having our parents there was nice but I didn’t feel the comfort of them being there at that point. I felt like my husband was the only one who could understand what I was feeling, and to be honest I didn’t feel like he could truly feel what I did. I was heartbroken my baby boy was fixing to have brain surgery. Part of me felt like I’m the reason. My preeclampsia led to him being premature which led to the slight brain hemorrhage which led to Hydrocephalus. I felt somewhat responsible, if I hadn’t developed severe preeclampsia and had to be induced would this have happened?

I tried not to think about the upcoming surgery, but brain surgery isn’t something you can just forget about. I was grateful for him being able to have surgery first thing in the morning so fasting for a shorter period of time, but it also extended our hospital stay. I was ready to sleep in my own bed again, but refused to not be there through the night for my baby. He would not be left alone in the hospital, and if he had to sleep there all night I would too. I left once with my husband to go home, use a full sized shower and repack for a few more days. Grandparents stayed at the hospital so he wasn’t alone.

Surgery morning had come, my baby boy only 6 months old was fixing to have brain surgery. I’ve had almost a week to process this yet it still seems surreal. Just a nightmare I need to wake up from. I was doing fairly good holding it all in, all it took was someone else to cry and I couldn’t keep it in. I told myself I wouldn’t cry until he was away from me in surgery, I had to stay strong for him. I couldn’t stay strong, I cried, I still tried to hold back the tears and keep them as minimal as possible. This would all be over soon.

While in the pre-op room we were told about an app called EASE we could download on our phone to be able to receive messages about how surgery was going. It helped ease the worry a little knowing we could at least know what was going on during instead of waiting until it was over. Once he was taken to surgery we still decided to go walk and ended up buying a fidget toy and a puzzle to try and help keep our minds off surgery. They didn’t help much, but once we got the first message he was safely asleep and they were fixing to begin surgery it helped to be kept in the loop. We received a couple of messages including one saying surgery went well and the final one included a picture of him sleeping saying he was out of the surgery room waiting to wake up from the anesthesia. That picture helped so much to know that brain surgery was over and he was sleeping peacefully.

He had a little trouble nursing at first due to the anesthesia but other than that he did amazing. He was tougher than I was, and recovery was quicker than I expected. By Sunday evening we were able to go home. Only a few days after brain surgery he was able to go home, can you believe it?

I will go ahead and end this post here, I’m sure it’s plenty long enough. I will save the after care and everything else for another time. I do want to thank you for taking the time to read my story, his story. This is something that was not easy to go through then or bring back every single memory of it now but I needed to get this out. Thank you for reading and I hope that if you’re going through something similar now you know you are not alone.

Babies First Christmas

My baby boys first Christmas has come and gone… well almost, we have one visit still to make next week.

I can’t believe how quickly it came and went. Everything was going by so fast we barely got the tree up, lot and decorated in time and didn’t decorate outside other than one yard piece. I have to remind myself that for his first Christmas it went well. We went out of town one day to visit family, had all grandparents over Christmas Day for lunch and he did great. Jax did so good unwrapping gifts I was impressed! I’m sure it helped that his birthday is in January so first Christmas is at almost a year old, but still, I am one proud Momma.

Not everything went as planned, but it was a great Christmas. I’m looking forward to next year when we can really start some great traditions with him.